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Workshop | 01 marzo 2024

Orphan drugs and rare diseases

Milan

3rd Workshop on the revision of EU's pharmaceutical legislation. As part of PRIN 2020 "The constitutional right of health and health organization after the pandemic emergency"

Institutional greetings

  • Franco ANELLI
    Rector of Università Cattolica del Sacro Cuore
  • Stefano SOLIMANO
    Dean of the Faculty of Law
  • Giovanni D'ANGELO
    Director of the Department of Legal Sciences

Chairs

  • Renato BALDUZZI
    Università Cattolica del Sacro Cuore, principal investigator
    PRIN 2020 "The constitutional right of health and health organization after the pandemic emergency"

Introductory Reports

  • Sunday TARUSCIO
    President of the KOS Study Centre for Science, Art and Society
  • Enrico PICCININI
    Head of Europe and Emerging Markets, Chiesi Global Rare Diseases

Debate (10.45-12.30) moderated by
Margherita DE BAC journalist, Corriere della Sera

  • Silvio BRUSAFERRO
    University of Udine
  • Luca COLETTO
    Councillor for Health, Umbria Region
  • Heather DEER
    Head of the Clinical Center, Mario Blacks Institute
  • Paola FACCHIN
    coordinator of the Interregional Technical Table on Rare Diseases
  • Silvio GARATTINI
    founder and president of the Mario Blacks Institute
  • Nicola MAGRINI
    former director general of Aifa
  • Anna ODONE
    University of Pavia
  • Rosaria RUSSO VALENTINI
    Lawyer before the Court of Cassation
  • Eugenio MERCURI
    "A. Gemelli" University Hospital - IRCCS
  • Marco SILANO
    Head of the Centre for Rare Diseases, National Institute of Health

Conclusions (12:30 p.m.)

  • Sandra GALLINA
    Director-General DG Health and Food Safety of the
    EU Commission

To access the Seminar CLICK HERE

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01.03.2024_Farmaci Orfani e malattie rare.pdf
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